Dementia is a collective term used for a number of conditions that affect the brain.
Depending on which part of the brain is affected, results in respective symptoms and behaviours.
Some types of dementia are better known than others, such as Alzheimer’s Disease or Vascular Dementia.
Dementia does not discriminate between different communities.
However there are some differences that may be more or less prevalent in some communities than others.
Lifestyle can impact on some communities such as the South Asian and African Caribbean, where Vascular Dementia may be more likely due to stroke.
Not everyone is aware of dementia, others have misinformation about it. Some people even think it might be normal as we get older or that it is a may be a punishment from God.
Better information and services might mean we can delay or prevent certain types of dementia.
Being informed can lead to accessing support and better care.
There is no known cure for dementia, although some medication can help delay progression.
Millions of pounds are being invested into trying to find a cure. However, it is also important to think about the care concerns whilst we wait for a cure.
Lots of research and services are working on supporting people with dementia and their family carers to ‘live well’ with dementia.
Lots of help and information is available, locally and nationally.
You can search the internet for ‘information on dementia’, types of dementia and on help or tips regarding caring for someone with dementia.
Or contact us at [email protected] or ring on 07966 166 665 if you would like to talk to someone about where to get help and information. Further information about dementia can also be accessed via the Alzheimer’s Society website: https://www.alzheimers.org.uk or you can ring on 0300 222 11 22
How might dementia affect me?
Dementia is a collective term for a number of conditions. Popularly known are Alzheimer and Vascular dementia, but there are many others.
BAME communities are more at risk of dementia because of our lifestyles and being at higher risk of certain diseases such as diabetes, blood pressure and clients that may not be very healthy. Whilst statistics show the likelihood of dementia increases as we get older. BAME people are more likely to get dementia at a younger age – Young Onset Dementia.
Never the less, being of BAME heritage we are more likely to experience a lack of understanding from family, relatives or the wider community about dementia and its impact on us. They will not necessarily know that you may experience memory loss, difficulty to articulate sentences, perhaps unable to work out time and space. Sometimes we can become angrier or withdrawn because of dementia. Manging things like diabetes or taking medication can therefore become difficult.
However, a lot of work is being done on supporting people with dementia and their carers. So, it might be helpful if you can start to learn about dementia and the impact it might have on you as well as what you can do to ‘live well with dementia’.
Live well with dementia
Dementia is a condition that is dictated by the part of the brain that is affected. Everyone may show different types of behaviours or symptoms. Instead, work towards making decisions that put you in control of what you want to do whilst you can make decisions and for when you find decision making difficult.
Above all, make the most of life. Living well with dementia may be a tricky concept but essentially try to focus on abilities and ;positives rather than the negatives and what might happen in the future.
How can Meri Yaadain help you help yourself?
Meri Yaadain CiC is a not for profit organisation. The means our aims are charitable to help people living with dementia and their family carers. We try to help people through a number of different ways:
Getting a Diagnosis
We would recommend you going to see your GP if you are worried about your memory. A memory assessment will put your mind at ease. Either you will know you are not likely to be affected by dementia or you will have know it’s dementia and can start to make appropriate plans on how you want to deal with it.
Community Roadshows & Support Groups
We deliver sessions in the community to help people discuss and learn about dementia. The more we talk about it the less likely it stays a stigma or taboo. We run our own support group but can also signpost you to others.
Thinking about the future
We will help you understand what dementia might mean for you and your carer(s)/family. This means that you can be in control of dementia and of your decision-making. Understanding dementia can help you keep physically and mentally active as well as to think about eating well.
Involvement in research
One of the biggest challenges of the current times is dementia. It is estimated that every 3.2 minutes, one person in the UK falls victim to dementia. In order to help combat the challenges posed by dementia, investment in research to find a cure as well as better understanding of care needs is necessary.
Whilst lots of money is being poured into understanding the issues relating to dementia, there is a vital need for people living with dementia as well as people caring for a relative or a friend living with dementia to get involved with research. We believe we need more BAME folk to sign up and get involved in dementia research.
Some people do not know how to get involved in research, whilst others are not sure if hey should do so. Researchers make sure participant details are confidential and anonymised. Ethically approved research should put your mind at rest.
For more information, visit Join Dementia Research at: https://www.joindementiaresearch.nihr.ac.uk